Sickle cell disease is often diagnosed at birth or within the first few months of a baby’s life. Both parents must carry a copy of the sickle cell gene for it to affect a child. It is equally experienced by males and females. It’s also slightly more prevalent in people of Latinx descent, occurring in 1 in every 16,300 births. Sickle cell disease affects those of African American descent most often, occurring in about 1 of every 365 births. Who is most susceptible to sickle cell disease? Consistent care can help avoid problematic symptoms. Other symptoms include pain throughout the body, swelling in the hands and feet, a damaged spleen that can lead to frequent infections, possible vision problems, breathing problems, an increased chance for asthma, sleep apnea, and delayed growth. What are the symptoms of sickle cell disease?Īnemia occurs when there are not enough normal red blood cells, causing fatigue. With consistent, quality care, your child can live a full and happy life. These cells can die and stack up, blocking blood flow and causing pain, infection, or fatigue. The gene causes red blood cells to become misshapen, resembling a sickle. Sickle cell disease, or sickle cell anemia, is a bleeding disorder that’s inherited when both parents carry a mutated copy of a gene. We’re here to support you every step of the way. You’ll also need to take extra effort to protect your child from sicknesses. ![]() Your child will need to avoid situations that can trigger a sickle cell crisis, including flying, visiting high altitudes, and getting too cold. However, with consistent care, a healthy lifestyle, and a sharp eye for changes in health, your child can live a quality life like any other child. We know that it’s frightening to learn that your baby has inherited sickle cell disease. Can my child with sickle cell disease live a full, happy life? You can also have your child’s hematologist or primary care doctor reach out to us to coordinate care. We welcome you to call us at (650) 502-7028 and speak with a nurse in our program to get more information. If your child has sickle cell disease, we’re here to help your child live a healthy life and help your family feel informed.
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